About Us

The Spina Bifida & Hydrocephalus Association of Ontario (SB&H), a registered charitable organization, has been committed to making a positive difference in the lives of individuals with spina bifida and/or hydrocephalus for more than 40 years. Part of that commitment includes supporting research and prevention efforts designed to reduce and ultimately eliminate the risk of children being born with spina bifida.

SB&H is the only organization in Ontario providing support and vital information to those living with the extraordinary challenges of spina bifida and hydrocephalus and educating the public about the conditions.


To build awareness and drive education, research, support, care and advocacy to help find a cure while always continuing to improve the quality of life of individuals with spina bifida and/or hydrocephalus.

SB&H is committed to reducing the incidence of neural tube defects by promoting the consumption of folic acid. Our awareness and education efforts include the Folic Acid It’s never too early campaign targeted to women between the ages of 18 and 45 and health care providers. Our goal is to increase the number of women taking a daily multivitamin containing folic acid.

We are communicating directly with health care providers to ensure that they are recommending adequate consumption of folic acid and are providing important information to their patients and clients. We also rely on public health units and other community health organizations to help us deliver the message to women across Ontario through their own community action.

The SB&H Board of Directors has recognized the importance of this initiative by adopting a Policy on Folic Acid and the Primary Prevention of Neural Tube Defects.

For more information about Folic Acid, info@folicacid.ca.

For more information about spina bifida or hydrocephalus, SB&H programs and services visit www.sbhao.on.ca.

SB&H is not government funded and generates 100% of our operating revenue from fundraising initiatives.

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