The Spina Bifida & Hydrocephalus Association of Ontario (SB&H) needs your support to spread the folic acid message and continue our work to reduce the incidence of spina bifida, the most common permanently disabling birth defect in Canada. A registered charity since 1973, SB&H generates 100% of its operating revenue from fundraising initiatives and does not receive government funding.
What We Do
Empower Every Woman of Childbearing Age to Take Folic Acid
When a woman takes folic acid daily for at least three months before pregnancy and during the first trimester, the risk of having a baby with a neural tube defect (NTD), including spina bifida, plummets by 70%. Since about half of all pregnancies are unplanned and spina bifida occurs during the first four weeks of pregnancy, it’s essential that all women of childbearing age take a daily folic acid supplement. It’s Never Too Early .
Work to Ensure Every Baby is Healthy
“Your baby has spina bifida and will never walk or have bowel or bladder control and has a 20% chance of permanent brain damage.”
We’re working hard so new parents will never again have to hear this statement from a doctor and to end the heavy physical, emotional, social, financial and psychological toll that spina bifida and other serious birth defects take on both a child and his/her family. Over the last decade, the incidence of spina bifida has dropped from 1 in 750 to 1 in 1,300 births. We need your help to realize our goal of totally eliminating the possibility of any more babies being born with this condition and others that folic acid can prevent.
Partner with Health Professionals
A vital link to women of childbearing age, including high-risk women
we provide educational materials to public health units, fertility clinics, midwives, dieticians, nutritionists, hospital resource centres, walk-in clinics, community health centres, to spread the good news about folic acid. We send more than 40,000 brochures annually to obstetricians, gynecologists, geneticists and family physicians for their patients.
Increase Public Awareness
We reach out to women and the general public through the website and the resources, including the Community Action Guide on it. We also counsel women through our toll-free help line and provide comprehensive, customized information.
Provide Unique Support
We are the only organization in Ontario offering essential services for parents, families, children, youth and adults living with the unique challenges of spina bifida and hydrocephalus. Our programs are rooted in the principles of self-help and personal support.
We have a tremendous opportunity to empower women and change lives. With your support, we can help greatly reduce the risk of babies being born with spina bifida.