Personal Stories

View: 

By Victoria Musgrave

Those were the words my parents heard from the doctor just hours after my birth. I’ve spent my life defying the words of that doctor. Weighing just two pounds, twelve ounces, I was born with spina bifida, a congenital condition that my parents had never heard of...

Wayne Johnson was stillborn in August 1955, diagnosed with a severe case of hydrocephalus. His mother Evelyn mourned the loss of her baby for many years. Thirty-two years later, Evelyn’s granddaughter Holly was born with spina bifida and, after serious complications, passed away. The...